I would love to hear from anyone out there who is or has raised a little girl with SWCAH or is an adult woman with SWCAH.  My daughter is 2 months old and has SWCAH.  We took her to the ER when she was 10 days old because she was vomitting, refusing to eat, and lathargic.  When we got to the ER her pulse was 50 and her potassium was up to 10 (which we were told would have killed an adult, but my little girl is a tough cookie!).  We ended up at the Iowa City hospital and she was diagnosed with SWCAH (although she tested negative for it on the newborn screen).  She is very mildly veralized (sp?), which I believe is a part of why it wasn’t caught.  I would really love to talk to other mothers of little girls with this or adult woman with this (so I can have a slight picture of my daughters future). Thanks for any feedback!!

Sheala