Liz,

You are more than welcome! I charge through managing my daughter’s CAH as if it is life or death...because IT IS! Sometimes other people, my husband, and even doctors feel I worry about things that are unimportant or unrelated to CAH. I still feel I am the authority and expert when it comes to my daughter’s health. I think what is interesting in your case is you really are an expert. You have dealt with this condition your whole life. It is second nature to you. I would stick to your guns, and follow your intuition.

Interestingly enough, many of the things I have questioned and demanded an answer to were counts and meds that were wrong and needed to be changed. As a result, my daughter has always been very well controlled. Keep doing what you are doing.

God Bless,

Katrina