I would be happy to talk to you about your son’s condition.  I can only imagine what it must be like trying to learn about his condition.  I have had this condition my whole life, and I have learned the most about my condition in the last few months by talking with others on this site.  I will be happy to answer any questions that you may have...you can email me if you like, or, we can discuss things here?   Up to you...let me know.  jsn122@yahoo.com

 

-Scott