Misty - I may be alittle late in treplying to you as I haven’t been on the board for a while, but..........most likely your EMT’s do indeed carry Solu-Medrol which is a perfectly safe alternative to the Solu-Cortef. Funny, I raised this exact point many times in the past and most people do not comprehend the signifigance and importance regarding their local ambulance/EMT protocols -- of course....until the day they have to deal with it. Anyway, can I tell you that another Mom from my state and myself were solely responsible for changing the ambulance protocol to carry Solu-Cortef and have plans in place within our state on exactly how our children are handled in the event of a 911 call??? First waht you need to do is find out exactly where the statewide childrens EMS are located. Usually the Department of Health can assist you and it is usually located within a large childrens hospital closest to you. Contact them to help you start a "Specialized Patient Care Protocol" emergency care plan for your child. I know that RI is one of the first states to start this new protocol, so you could mention that to them. Then, next you will need to contact the Chief of Emergency Medical Services in your Dept of Health and speak to him about your child and ask him specifically what the protocol mandates for your child’s medical condition. You will most likely be very surprised and shocked that it does not follow what is medically necessary for CAH. DO NOT PANIC!! Your next question will be: "Exactly what is the procedure I must follow in order to have the DOH amend the protocol of emergency vehicles within our state to carry Solu-Cortef AND what plans are being used in this state that would help protect my child in the event of an emergency to ensure that he is treated with consideration of his/her medical condition as his emergency medical response is very, very different from the average person?" ((For ex. We pushed our State to amend their Shock Protocol which mandates the use of Solu-Cortef (specifically) when a patient is encountered wearing a medic-alert that specifically states "Adrenally Insufficient" and Solu-Cortef is now a required medication on ALL ALS (Advanced Life Support) and non-transport ambulance/rescue vehicles".)) As you might suspect -- it can be a very long process. It is not easy changing things with in the State DOH’s!!! I know our preocess alone took about a year, so get started. If not for your own child, but all of the children after her. It feels really good to change things that not only benefit your child, but potentially someone else’s as well. Good Luck and please feel free to contact me if you have any questions!

Valerie from RI