Welcome Renee!  I’m new at all this as well.  I have a 3 month old with SWCAH and just found this sight about 2 weeks ago.  I can’t tell you how much it has helped me and made me feel more relaxed about everything.  Don’t get me wrong, I still have a lot of questions, but it is helping.

My daughters Medic Alert bracelet reads "Congenital Adrenal Hyperplasia:  In Emergency Give Cortizone".  We listed both our endo and our reg pediatrician.  Now, I don’t know if this is what others would suggest to have on the medic alert bracelet, but it’s what we were told to put.

I would reccommend going to the CARES foundation wesite for support.  I just recently signed up, but haven’t received my info packet from them yet.  However, it does give contact people for every city and state and I know there are two listed from Kentucky.  http://caresfoundation.org/support.html