re: re: re: re: question about CAH
Apr. 20th, 2007   8:47pm

thanks Sheala  my daughter was first diagnosed at birth with simple virilizing CAH but about 2 weeks ago she went into adrenal crisis and we found out she was actually a salt waster.  so i am relearning lots of stuff and we are still trying to get her adrenals suppressed.  she just turned 7mths but wears a 3 mth size so i am just so lost and confused about so much.  i bought a great book called Congenital Adrenal Hyperplasia A Parents Guide.  i have already been involved with Cares foundation and handed out abunch of their bracelets to family and friends but the two numbers for support in kentucky werent helpful one women said her number was there but she didnt have a support group and the other person never replied to my email but we will work it out and maybe start our own local chapter! it will turn out great either way.  thanks for the info on the bracelet also it is very helpful

renee
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