i am a registered nurse and i know the risks associated with his disorder and i know that the idea of having a child with a man that i dont want to marry if he wont take care of himself sounds "off". i know about being a carrier. his parents were carriers and did not know they were until he was born and went down to 2 lbs within 2 days of being born. his parents have 4 children who are all perfectly "normal" and he just happened to be the one to get it. its geneology. i have tried to get him to go see a doctor. i work at the hospital where his pediatric endocrinologist works and i have talked to one of his collegues to see if he could persuade him to go. he agreed with me that i cannot make him go if he doesnt want to. i can only do so much. having a child with him is what i want and he really wants to be there. no, i do not want to be left a single parent if he were to die, but that is not up to me when he dies. that is up to his disorder if he doesnt treat it and up to God as to when he goes. we are planning to go to a genetic counselor before we really try to conceive. i have a muscular dystrophy disorder that i may be a carrier of as well because my mother and uncle have the disorder in different phases. we are not being naive or selfish about wanting to have a child. we both want to be parents and if i get left with a child to care for on my own, at least i would know it was with him.