For me overall, getting up in the morning has definitely improved since taking a 3-4am dose and then another dose just as I get out of bed.

There are some days still, that as soon as I wake I just can’t open my eyes and all I want to do is sleep.....but I do get out of bed (big mistake) and every time that happens I subsequently have a pretty bad day - I should learn! So something must be going on.

I must say I am dreadful/extremely resistant to taking extra oral meds usually,  unless I need an injection and then I definitely inject. Today’s a bad- ish day, the internal shakes/quivering are there, so I’ve just taken an extra 10mgs Hydrocortisone.

Also I hate noisy environments and loud stressful music. Bright overlit venues, particularly flourescent lights agitate me so much - thank goodness there are not many of them around now!

 

Thanks Michelle for the hug. I have been very tired since coming back from the trip. The other couple who went with us, although 10 years older, have bounced back and said they’re fine  - completely back to normal.  Grrr!