Thank you for the kind words. I wrote it for you and every other mom that reads this message board. I want every mom that has a child with CAH how special they truly are.

You know, you will get to the point where your husband is. Men approach things like cars. I always claim that if I am reincarnated, I better come back as either a dog, or a man. There is a line you can cross when researching CAH. It is easy to do. But to me it sounds like you have it handled well. My mission the day my daughter was born was to know more than her endocrinolgist did. I am not quite there yet (wink) but I am truly trying to get there. As your daughter gets older, you will get "used to" CAH in your family’s life. I can remember crying for months after my daughter was born. Cursing CAH every time she got sick. Ok so I still do that time to time. But you do get to that place where it isn’t always on your mind. My daughter, my baby, will turn 10 in July. When I think back to where I was 10 years ago, I am amazed I got to where I am today. And I know when I look back in another 10, I will find myself in a different place with CAH then now. CAH was this close in my face every time I turned around when she was first born. But then you see them grow, like the other kids are. You see them live, as other kids live, but just a bit different. Sorta like the children with diabetes live with their disease. And you sit back and say, "WOW we can do this." I have always told my daughter that everyone has something they are born with that brings them an obstacle in their life. Some need glasses, some need wheelchairs, some need pills. Everyone has something. We have taken CAH serious when she gets sick. But in between we just keep it within "reach" and always a prayer away. Continue to educate yourself. I believe education takes away that dark side of the unknown. What is more fearful then the unknown? I can remember the first day I stood in that NICU ward feeling the life sucked out of my stomach when they said my newborn had a disease. Death was the first thought that jumped to my mind. Then a million other thoughts and questions. I stood there paralyzed in fear. What brought me out of it was, my faith. You have to have something to fall back on. Call it Buddah, God, whoever it is, keep your faith solid in whoever your belief is in. Then I read everything I could find on CAH. Taking away the unknown. Then I found this board and found power in numbers! I found it is going to be ok. There is a saying, "A wise mother will do the best she can do with what she has, then she leaves the rest up to God." With every illness, I learned. I continue to learn. Soon when she smiles, it will be her smile you simply see and not the CAH behind it. But don’t forget to take that time to look for it. God bless you!