ShealaThank you! Thank you for being such a strong mother for your daughter and showing others how to do it. I haven’t had to deal with an illness yet, but I know when that day comes I will see nothing but the CAH. She has started to smile and do little giggles, and let me tell you, that does help. She is a beautiful, amazing child and I am truely blessed. One of the lines in the poem you posted said something about questioning G-d when your child is diagnosed. I was there. I have to tell you, He was not on the top of my list. However, I am starting to think that He really has a plan because He could have taken her that day of her first adrenal crisis, but He chose to leave her here with us.
Thank you again,
Sheala