Can I have you and G-d with me for her first real illness? :)  You really seem to have such a strong grasp on life.  I admire you! I hope your daughter realizes what a wonderful mother she has.  Although..... she is getting to that age :) !!!  I teach middle school, I know how loved mothers are at a certain stage in kids lives.  Thanks again for your posts.  If you don’t mind sharing, what’s your daughters story?  Was she diagnosed through a newborn screen or did you find out later?  Did she even have a newborn screen done?  I know you mentioned that you almost lost her at her first adrenal crisis, that makes me think she wasn’t diagnosed at birth.  My daughter tested negative on the newborn screen, then tested positive after being tested at 10 days of age after her first adrenal crisis.