StephanieI am fortunate as my parents pay for me. Hate to admit it, but it is true. I was fortunate enough to go with my mom to Indianapolis, and last year I went to Jersey (I live in Connecticut, so the drive is no biggie). I go to the conference because: 1. I am still learning about CAH (my two kids were diagnosed about 3 years ago). 2. I get expert medical advice. 3. I meet other people who go through the same stupid struggles I go through on a daily basis, as I try to manage my kid’s health. 3. My son was absolutely over-the-moon when I took him with me to Jersey. All of a sudden he didn’t feel so alone in the world, cause he met other kids just like him. 4. Did I mention expert medical advice??? I don’t talk to people who dabble in CAH along with other endocrine issues. I talk to people who live and breathe this stuff, and can treat my kids properly...not oversuppress them, they can guide me through the rigid care for CAH. AND NUMBER 5....CARES. I can’t imagine my life without CARES. They understand. Can you believe that? You don’t have to say in a roundabout way..."uh, duh, my kids adrenal glands don’t work"....and get a blank stare back. If I could host a CARES conference in my house I would (relax Kelly...LOL).
Figure out a way to go. It is worth it. CARES is doing a fund-raiser now to help raise money. According to the literature I got...$1000 will help pay for a family of 4 to attend the CAH conference.
Good Luck!