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The endocrinologist said yesterday that he didn't have all the results back. (Great..more waiting) but the results he did have ruled out the most common form of CAH. I think thats 21-hydroxy-etc.?? I still don't know all the enzymes and hormones. He thinks it might be the rarer 11-h ..etc.. one based on Ben's blood pressure which is currently 140/65 which he said is pretty high. So I have to wait another week to find out what is going on.
I'd be interested in finding out what your thoughts were when you first heard the diagnosis...apart from "congential what?" :). Also, the posters from WA, who are your endocrinologists and what is the support stucture like in WA from what you've seen.
