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I know it may seem a bit daunting at the moment but it gets so much easier as you get used to dealing with the CAH. I have two children who both have SWCAH and both are as different as chalk and cheese. My daughter who is almost 8 has had many trips to Princess Margaret Hospital (Perth) for different illnesses since she was born and my son who is 4 has never once needed to go to hospital. He just seems to cope much better when he is ill. The point I'm trying to make is that all children with CAH are very different and you will soon learn to judge what sort of treatment your daughter needs. Always trust your instinct and know that it is much better to be over cautious than leaving things to chance! Another suggestion since you are not near a major hospital is to have a supply of solu cortef on hand and learn how to inject it in case of emergency. I keep a thermal bottle bag with syringes, medi swabs, needles and the solu cortef around for emergencies. Both of my children are extremely active and both ride motorbikes. I don't hold them back at all but rather am extremely well prepared to deal with any emergencies that come our way. Fortunately we have never needed the emergency kit but it eases my mind that I have it and know how to use it if I ever need to.
The book by GL Warne is also great but what I have done is typed up a couple of pages of notes for friends and family. I took all of my information from this book. When they look after L'tecia and Shane so they can refresh their memories on their needs. It highlights basically what CAH is, how it is treated and gives precise detailed instructions on what to do in an emergency. It also tells them what constitutes an emergency for a CAH child. This way they get all the important information without all the other stuff that they don't need to know about.
Also get your daughter a medic alert bracelet. Get the forms and information posted to you from Medic Alert and when you see your endocrinologist ask them to help you fill in the forms.
