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We don't have private cover for our CAH daughter. I was always under the impression that if we got cover for her it wouldn't include any medical expenses associated with her CAH because it was a pre-existing medical condition. I haven't really asked the insurance companies, I just thought this would be the case. I guess I should find out some more information.
We will also be at the symposium in Brisbane because we are on the Gold Coast, should be good to catch up with other families.