Congenital Adrenal Hyperplasia

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re: re: Mum feels alone in NSW
Apr. 19th, 2003   9:44am

Hi Joanne,

I'm just learning the computer so I'm not real good at it.  I can't seem to find your personal E-mail address. If you send me that I'll be able to get back to you through our E-mails.  Anyway How's things?  I'll just add to Lisa's message that I receive exactly the same as what Lisa gets from  centrelink.  My paediatrician filled in all the forms I never even read them so I had no problems at all.  However, I do remember 12 months later when it came up for reveiw.  That I did receive a phone call from centrelink.  Asking me to explain what CAH was,  which as you know is pretty difficult.  They didn't understand at all,  they seem to think that if you look normal than there is nothing wrong with you.  But I must of said the right thing because I think I was pretty close to losing my benefit.  I think it is who you speak to and what sort of day there having.  Pretty lousy really.  But now I think that the reviews last for 5 years now instead of 12months.  So no doubt I will be getting another phone call next year.  It really does come in handy because we have to travel to Toowoomba three times a year so it does help.  The health care card comes in handy when you have to go to the doctors once a week.  Like we did when Ryans blood pressure went through the roof.  Well I'm dribbling on a bit now so i'll catch ya later.  Chin Up. 

Your CAH Mate Kelli

 

Kelli




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