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re: I am 32 years Old with CAH, looking for advice from Older CAH (21-hydroxylase deficiency) sufferers
Oct. 14th, 2003 7:56pm

Hi James

Sorry to hear that you have tumours - are these adrenal rests? I have read that these can be treated with increased meds, as far as I know there hasn't been many studies done on adult males with CAH but here is a link to one paper

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=11443169&dopt=Abstract

Have the doctors checked your bone density?

Good luck and please let us know how you get on as we mums who have younger children are very keen you learn from your experiences.

Mary