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I'm a mum of 5 kids and 3 who have C.A.H - two boys and a girl. ages 12,14 & 15. the 15 year old was diagnosed at 3 weeks old and was very sick,. The 14 year old was diagnosed at 5 days through blood tests, and the 12 year old was diagnosed at birth.
I was getting centerlink payments but they cancelled them and told me they weren't disabled enough to keep recieving payments as they are older now and don't get as sick.
I'm using my daughters computer as i don't have the internet yet , just thought i'd send a little message if you would like to contact me you can e mail my daughter's address...
