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any cah girls out there offered adrenaldectomy? need information May. 21st, 2004 11:58pm
hi i am seeking information from any one with cah who has had adrenaldectomy or offered it to help with their condition.this has been offered as a solution to help symptons but with no back up information as dr.says they cannot find out real people who have it already except for one man last year and he is coping ok. they say in theory it will help .please help if you can thanks.