Congenital Adrenal Hyperplasia

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re: re: re: 12 year old swcah daughter RE: high blood pressure
Jun. 5th, 2004   9:09am

Not only the florinef can beat up the BP, but also in combination with situations with stress, not feeling good, pain, sadness. I'm WSCAH and 32 years old male.  For example I always take care with feeling comfortable, as well in the hospital  as well in the city. I drink a lot of water..for my kidney's to rinse and to know there are a lot of minerals in my body at the moment. If i got stress, i relavate, if i can't take any more alone, i ask help, talk about it and over better things in life.  So i can slow down again. For a 12 year old girl it would be very hard to pick this up, but it's very important to be open, give a lot of space to calm down and it doens't matter if the same song starts over and over again. It sounds a little bit stupid, and simple, but it's not. CAH is also a social interactive thing. My Endo asks about me every time (not CAH, he knows it from the figures) how i'm doing/going. And if i want to know something about CAH i ask him. I know one thing for sure, if she gets an adolecent she gets stabile, if the WSCAH gets stabile on the therapy.

I wish all the good luck and if you want to contact by mail: dirkinsneek@onetelnet.nl

Greetings Dirk

 

dirk from Holland




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