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re: Daughter with CAH, diagnosed aged 4, now 18. Always overwhelmed Feb. 3rd, 2005 2:07pm
My daugher is 16 and has CAH. She, too, worries about her weight. So much so that over the summer I had been concerned about how little she was eating. The kids get such pressure from the media and their peers to be so thin. Well, she has gained back a few pounds, but is still thin but healthy and is working constantly to maintain it. I think it is a teenage thing complicated by the CAH and meds they just take.
My daughter's pulse has always been a little higher than normal. Twice she had periods where her BP was a little high and it came back down with no change in her meds. She wore a heart monitor twice and they said her heart rate was a little high whether she was sitting at rest, doing an activity or even sleeping. It was not high enough that the cardiologist was concerned. He thought it was a result of the steroids, but not enough to do anything about it. It's kind of a trade-off. We must maintain her hormone levels and this may be a result.
