There is so much information and discussion regarding girls and surgery, and management of adrenal crisis yet it seems there is little information out there about management through teenage years and adulthood, both medically and emotionally for males with the virilising form of CAH.
I am very keen to hear from anyone, but in particlular adult males, their parents or partners regarding how they were medically managed through teenage years, their experiences, and outcomes in adulthood. In particular adverse effects of steroid use, social and emotional issues and fertility.
