Congenital Adrenal Hyperplasia

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re: re: I hope you are feeling better Rosalie :o)
Oct. 10th, 2006   9:18pm

Hi Rosalie

Hope you are feeling better and I find it frightening you have that "inner trembling", call it what you like, it is real.  I forgot to take am dose of hysone yesterday and it started with me last night.  You can certainly feel it but if you hold your hand out, you cannot see it, so you cannot prove it.  Thank goodness for that site on geocities. I thought this was to do with anxiety.

There are many side effects of meds and for this to have this start after missing one med indicates that it may be a drug or a nurological symptom!  Yep, that is what I've found in my travels, CAH may induce nuroligical problems.  I found this on the net but I can't remember where and I have been looking for the past few days now.  I think I used www.uk.yahoo.com/ and put in "dexamethasone side-effects". The site has a yellow background.  I've only found this "nurological problems" recently but I really believe it's true and has been overlooked.  Again, they're not listening.

Now, how abt that!!  Did you know that?  Also psychiatric problems which I will write abt later.  Anything odd or unusual always think CAH first.  As I said, the endo's have only worked out the different types of CAH but I'm fairly sure they do not know of all the side-effects or psychological issues.

Anyway, the reason I dropped in was to reply to Rosalie's Q re TMJ.  If you don't mind, I'd like to start another discussion as I think it should stand out separately from other things we have talked abt.  OK Rosalie? First I'll have to have a good lie down and a Bex:-)

Lots of love

 

farli




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