I too have recently been told that I have late onset CAH after tube tests, blood tests, CT Scans, diabetics test and more tests etc...For over a year my DH & I were trying to conceive our second child.
I had a u/s done in Jan & was told that I had 2 ovarian cysts so I was then referred to a Gyno who after more test referred me to a Prof of Endo (ABSOLUTELY LOVELY & ENTHUSIASTIC IN WHAT HE DOES) who sent me for more tests.
2nd visit: I was informed of the results of the Synacethen test & explained the type of CAH I have. I of course had so many questions & he answered them all... I questioned about the possibilities of my DD having it & he said that there is not even a reason to inform my DD as she would not have it as my DH is not a carrier. He prescribed 1/2 tablet of Dexmethasone (a steroid to bring up the hormones & not work so hard to get normal cortisone levels) & I had anther synacethen test. I rang my DH straight away & told him of my diagnosis & he seemed interested & supportive.
3rd visit: Endo upped dosage to a full tablet. He was extremely positive in saying that DH & I should be pregnant with our 2nd within 6mths. He then went on to say that he is so sure of this that if we don't fall pregnant within 4mths to go back & see him where he will then look at other things too such as sperm count etc... (DH = 37 & Me = 30)
Ive also filled a prescription of Clomid that the Gyno prescribed me before I knew I had CAH. If we are not pregnant this month I´m going to give it a go too.
Even though my DH hasn't changed towards me, since finding out I don't feel as confident in my ability to excite him as I did before. He´s not rejecting my advances in any way (that would be very hard to conceive another child if he did ~lol~) I´m just not as confident as I was before. I have even said things like ¨honey, I am all woman, Ive proven myself... we conceived naturally, I carried her full term & gave birth naturally... you were there the whole time¨.
Since taking the full dose of Dexmethasone I don't feel like I'm in a bad mood all the time, my anxiety has dropped enormously, the down fall for me is that I get EXTREMELY moody coming up to my periods. Our sex life for over a year & a half now has been all about conceiving so there is none of that good stuff like spontaneity & excitement like it used to be.
Sorry for blabbering on so much but its the first chance Ive had to talk to someone who is going through something similar to me with respect to CAH. There is allot of info on CAH but not as much for late on-set CAH, even harder to find info on people with late on-set CAH who is trying to fall pregnant.
