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re: re: re: cah in 20's to Rosalie and Kat Feb. 5th, 2007 4:24am
Rosalie,
Yes your explanation was definitely clearer than mud. You actually described this about the same way that Erin from the CARES foundation described it. Although, I did understand your version a little bit better. ;-) I'm not sure on whether or not my husband is a carrier, but I do know for a fact that I do have SWCAH. As for my daughter, I am still waiting on the genetic test results. Although I am waiting, they already have come to the conclusion that since most of her labs have shown high test results, she has CAH. My husband told me that he would go to the base endocrinologist who specializes with CAH and talk to them about getting a genetics test for himself. I would really love to know if he is in fact a carrier. Thank you for your very good description, I appreciate it.
Kat,
I try to be caring just because my whole life I have sat here and asked God and my family, "Why me? Why am I the only one in my family who has it?" To me I just don't understand why out of my whole entire family, I am the only one with this disease. My parents obviously both had to be carriers and thats how I got it. But as for my brothers, they are perfectly unaffected. They're very lucky. Unforuntalely during my entire pregnancy I kept saying to my family, "I hope Ayrianna does not get this disease because I know what this is like." But she has one upped me. She was lucky enough that her labia, clitoris, and everything else down there is physically okay. I had to undergo surgery when I was 3 years old. That experience has left me emotionally messed up. A psychologist once told my mother that I showed signs of being molested. I never quite understood that because I never remembered being molested. Then I put 2 and 2 together. When I underwent that surgery, right after I had to be dilated. I remember the "male" doctor putting the dilator in me. Unfortunately for him and my mother, I was too young to realize he was doing it for my own good. So as a young girl, I classified it as being molested. I think to this day, it has done something to me emotionally. But anyway..I hope that this all helped you understand that when you do in fact have a child, you don't have to worry about a lot because your child will be lucky to have a parent whom can relate. There are some good things that do come out of this situation.
Well talk to you all later and I do appreciate it Rosalie.
