Hi Lisa
That is excellent news that your nephew has been diagnosed and he is well. I onlt know how your sister feels. I would be happy to chat with her.
It can be a rollercoaster having a CAH baby, I have a daughter who is now 2 years old. We have been very lucky with her as she so far as not been as sick as some. I am a member of the CAHSGA (Congenital Adrenal Hyperplasia Support Group Australia). This group has been fantastic to me over the past 2 years. We produce a quarterly newsletter and are currently updating our website. We also have a family symposium each year with guest speakers. This year it is being held in Sydney.
Please email me on shandy12s@optusnet.com.au if you would like to know more for your sister. Your message brought back memories for me as it was my sister who did the research and got us in contact with the support group.
