hi all
last week my 17 week old grandson took sick and on friday was diagnosed with having ACH at present he is in the royal brisbane children hospital and commenced his medication programme on friday night.
although his mother has spinabifida this is a problem with much severaty than we are used to, i hope we can get some help out there in helping us to understand how to help her coup with this. im sure that there are many of you out there that have had a magnatued of experiance and share this information with us would be most appriciated.
we live in bundaberg and fortunatly our daughter and grandson live with us.
any advise would really help.
regards
al
