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re: my grandson has just been diagnosed with ACH Jul. 1st, 2007 1:34pm
Dear Alan,
Although American, this site could help http://caresfoundation.org and could direct you to the Australian Group as well. They will explain adrenal crisis if the Endo hasn't already
I have Simple Virilizing CAH (non-salt-wasting) I just went to the doctors appointments and took the medication - CAH was just a part of me.
I just got done working a 12 hour shift. I'm looking forward to taking pre- nursing classes in Sept.
