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So sorry to hear of what happened to your baby son.
When in Melbourne, you can visit the RCH ( Royal Children's Hospital ) Endocrinology Department and the doctors there will definately be of help. We were there before with my 3 1/2 y/o gal and the team of endocrinologists were simply wonderful.
You can try to get in touch with Prof Garry Warne or his team doctor, Dr. Peter Simm to " start the ball rolling ".
