Hi Dona
I can only imagine the stress you are under. I do know of some families with sons that have had a late diagnosis of CAH. They would be of similar age to your son and I'm sure they would be happy to chat with you.
I would recommend to talk to a family that has gone through this exact situation because there are alot of different issues with treatment for children with a later diagnosis.
Please don't hesitate to contact me and I'll put you in touch with a family.
Kind regards
Linda
lindapowell@optusnet.com.au
