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re: re: re: re: re: am i the only one to have dramas with centre link/ carers allowance?
Jan. 6th, 2008 1:33am
Hi I didnt mean to turn this into a debate on whose child with what condition deserves more help than anyone else.I also know people who have kids with diabetes and I didnt mean to suggest that they were less entitled to a carers allowance, I was merely suggesting that the two conditions needed carefull monitoring, control and many trips to the doctors and it didnt seem to me that centre link were very willing to help me because unlike Diabetes, CAH is relatively unheard of. My point is that it seems to me that unless your child has a very common condition it is hard to get assistance and I feel like I am forever having to explain to everyone and I find it frustrating to say the least. I didnt apply for the allowance because I feel entitled, I was told by the Peadiatrician that diagnosed my daughter that I should apply, because people caring for those with CAH can receive it and my GP agreed, so I applied. I only posted this message so I could find out if there was anyone else who had been through this situation and how to see how it turned out for them. Everything about CAH is still very new to me ( like most people,I hadnt even heard of it until my daughter was born with it) and I was just looking for a bit of support and a understanding ear to listen. Thanks a lot.
