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Congenital Adrenal Hyperplasia

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re: am i the only one to have dramas with centre link/ carers allowance?
Jan. 7th, 2008   5:15am

Hi there Lisa,

I too have had problems with Centrelink, although now, like Michelle, am very greatful to recieve the payment.

I have 3 children now 10, and 2 boys 7 & 4.  The boys were diagnosed in July 06 and the Endo from NSW filled all the relevant forms and I handed them in to Centrelink.  In Dec that year we moved to QLD, and in late January when I had not heard from Centrelink asked what was happening with the claim.  I was then told that I had to have a QLD Endo fill the forms out, and I tried to explain that the Hospital we go to was a 2 1/2 hour drive!  I was upset as one particular injection for my 7yr old cost over $40 every month plus expenses such as, full price meds for 2 boys, Private Endo, fuel and other travel costs.  I went to my GP who used to work in Melbourne as an Endo and he filled out the forms.  There is a few boxes that he ticked so maybe your GP filled out the wrong parts??

I am very greatful as I said, as we now have to go to the Endo every 3 weeks for at LEAST the next 6 months.  It costs me over $100 every time we have an appointment and the money I recieve goes on meds, (eg. we have to have 4 bottles of solucortef) and travel expenses.     

Hope all goes well, from Dona...    

Dona




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