Congenital Adrenal Hyperplasia

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re: To Barbara
Feb. 15th, 2008   10:32am

Hi Barbara,

We just recently travelled from Caloundra to Newcastle, which took 10 hours, and we have 3 kids 2 with CAH.  They were both not themselves during and after the trip and the youngest one was ill for a few days after we got home!  If we ever drive back, (will definately fly next time!!), I will double dose and see if that makes a difference.  

Has anyone had trouble with long flights as we are going overseas next year??

As I said before we had trouble with centrelink as well if you are in the Lake Macquarie, (since you said Swansea), area I know that Dr Anderson from John Hunter Hospital filled out our forms and we have a health care card?? 

Good Luck.....

   

 

Dona




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