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My names Barb and I have 2 SWCAH girls 9yrs and 12yrs, and are doing very well and have done most of thier lives we have been lucky, although my youngest had a vaginalplasty at 15mths and will need another but there unsure when, my eldest is on 6mg morning 4mg lunch 4mg at night of hydrocortisone plus florinef twice a day and my youngest is on 6mg then 4mg then 6mg of hydrocortison and florinef twice a day I dont know if thats a lot for a swcah child or not but it seems to work well they have maintained the same dose for years now. oh by the way I live in Swansea NSW great little town by the sea we moved here 7 years ago from Sydney best move we ever made, its a great environment for raising children but we do miss the medical in Sydney we have struggled to find a good private doctor most have closed there books here but we manage. Our girls do most sports or activities I worry about contact sport but they still do it, anyway nice talking with you.
