Congenital Adrenal Hyperplasia

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re: re: My daughter. I'm very worried.
Sep. 1st, 2003   10:15pm

Thanks for your replies.  I'm going to take my daughter (she's five by the way) for her tests on Thursday. 

I am currently untreated because I was left so disillusioned by the care I received that I really just didn't want anything more to do with endocrinologists.  I figured that if the best they could give me was giving me worse sympoms than my original condition, I was better left untreated.

It's interesting you mention that CAH can cause PCOS.  I have 14 cysts on each ovary.  BUt it couldn't have been prevented as they were discovered at the same time I was diagnosed.

Three years after abandoning treatment, I went on to naturally conceive, and then a year after my first child, I naturally conceived again.  That's why I gave my daughter the name of an Angel.  Gabriel (Gabrielle) the arch angel. And my son's name means all that is masculine of God.  Boy do they live up to their names!!!!  I consider myself blessed and they really are my miracles.

Anyway, I think that before I can make any decisions regarding treatment for my daughter, I have to be sure what we're dealing with, instead of burying it in the sand.

It' s just I remember everybody saying how tall I was when I was a child, and then I ended up so small.  And when people tell me how tall my daughter is, it brings it all back and I get worried, even though she's already been tested. 

Hopefully, it's nothing, and she'll be lovely and tall as her destiny dictates.  And if she does have CAH, we'll deal with it, maybe she'll still be lovely and tall! lol

I'll keep you posted.

 

 

 

Gisela




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