Hiya Sue, Thanks for your response. :)
I laughed when you asked if I was exhausted. No disrespect to your question, but it never occured to me that I should be. Exhausted is the opposite of what I am. I've just asked my husband if I easily get tired and I've just asked a friend too. Because sometimes we have different perceptions of ourselves. And he agreed that I'm active. And her answer was no way, I'm full of energy.
I look after my two children, I walk an hour a day (the school run), I exercise on top of that.
I cook meals from scratch. To the extent that my children hate tinned food. I have always been full of energy. I've never been one to be ill or tired.
Even at school, it wasn't enough just to do well in my studies, I also took part in everything there was to take part in. I excelled at music and took part in sports and drama. Even then, I was never ill. I can only remember having a fever once in my whole childhood.
But I have only got the mild form of CAH. CAH does not affect my day to day life. Apart from facial hair, missed periods and short stature, you would not know that I have it. I never get ill, the whole family can get a cold, and it wont' touch me. The same with stomach bugs.
It was only when I was on medication that I was tired and lethargic and had no energy for anything. Which was horrible because it was the opposite to how I have felt my whole life. Maybe now you can understand why I've such an aversion to medications for a mild case of CAH.
Even if it turns out that my daughter does have late onset CAH, if she's healthy, I woudl be so averse to putting chemicals in her body with the only aim of making her taller. When all steroids, have side effects. The most worrying for an athletic child, being weight gain. If it's to protect her fertility, and to stop facial hair, that's a different story. But like you say, it's a big if, and we'll find out soon.
I don't see that I personally have anything to gain by taking treatment. What exactly would I be treating? The facial hair? Get it waxed once a month. The periods, I'd rather not have them every month anyway. Infertility, I've got two kids, and I don't want any more. The PCOS, they cause me no pain, and apart from the fact that I had them scanned. I'd never know they were there. The weight, well, I do eat too much, so I can't blame that on CAH. So I'm not sure what I'd gain because all long term medications have side effects.
But, thank you so much for your encouragement. I have pushed this part of my life to the back of the cupboard for a long time, and I think not getting my daughter retested was a way of keeping it there. But as Megan said, I can't deny the responsibility of Knowledge. And either way, it will put our minds at rest.
Is it a common thing to feel tired then if you've got CAH? I've never heard of that.
Keep you posted.
