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re: re: anyone in N.Ireland May. 22nd, 2004 1:36pm
hi i am also a mother of cah child and living here i have just discovered this site and am amazed so many others have same condition. my daughter is also 22 and attends the Royal every six months still. she has coped so well all these years although it has been hard for her and us at times.she is sporty and works in a retail outlet. it is great to see we are not the only family here with this condition. we have three other children who may be carriers but have not cah 2boys and another girl.