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re: re: re: anyone in N.Ireland May. 23rd, 2004 8:26pm
Hazel
Great to hear from you. I have been told that about one child a year in Northern Ireland is born with CAH, although there were 2 others in the same year my daughter was born (2002). Are you and your daughter aware that there is a support group set up in England. We receive newsletters and they hold a conference every other year. We have been to one and found it very informative. It seems that there has been very little contact if any between people with CAH and their families here. I am in touch with two others only, also with young children but am wondering if others would be interested in establishing some contact. Your daughter might especially find it useful to chat to other women with the same condition. if you have any interest or any ideas on this, please let me know
