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i am doing my university dissertation on the medical treatment of girls with cah as i know someone with the condition and am quite concerned about the way it was explained to their parents when they were a baby.
i would be really grateful to hear about any one's experiences about how well doctors explain the condition to people with cah and their parents and how people feel about any surgery they have had.
I am hoping to get it published in a medical journal so if you would like doctors to know how you feel about your treatment please let me know.
