Congenital Adrenal Hyperplasia

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re: re: re: re: personal story
Aug. 21st, 2005   10:30pm

Thanks for your reply. I'm back online now new modem.

It is a fact by the department of health in the U.K that men do not talk about their conditions or they hide it. Ask any G.P they will tell you the same. We men are conditioned to sweep under the carpet but like me a mound gets created. thats why men with cah don't often show up. As it's a secret problem and they deal with it their own way.

I to felt I was molestered and phychologically raped having to stand naked on a box while some stranger takes snaps of your privates is out of order. When I collected them to be distroyed I was only 15 I was devistated. I will never challange the diagnosing doctor as he's now dead but if there is an after life I will be looking for him. I have gone as far as trying to slit my wrists but an inner strength kept me going. and I've been on anti depressants citalipram. As a kid I knew I was different and tried to disguise my condition by nicking my dads razers and shaving down below. I was bullied because nobody believed my age and they thought it was weird I was so tall and I was like 11 but playing 7 year old games. I had a lot of aggresion when I was younger and put a few of the house windows through. A few times it took both my parents to pin me down when I was on one to calm me down. I'm lucky I didn't end up in care.

A pub in the USA no way. I have been to washington as I have cousans there and Florida and Memphis. I love America just a shame health care is so expensive. All the exams got to me and when I finally got a dicent Doctor I took out my anger on him and gave him mouth full after mouth full. He thought I was going to lamp him. If he was the ped consultant I had I would have done.  I never got the anti puberty drugs they now give boys with CAH so I was sexually active about 8 years old. The forbiddan word masterbation and ejaculation. I kept it all a secret. No one was going to discover not even the doctor, but then again I didn't even know what was going on. At primary school I ran away and was braught home by the cops. Just wanted to escape. since I was taller I had an advantage of sport due to my strength. I wasted everyone at sports day I loved it But the sport teacher put me as goalie in the soccer team as I was the tallest. At high school everyone caught up I was slaughtered at sport beaten on my field. It made me realise then what was going on. I skipped school once to miss sports day. I was finished and gutted like a professional playing his last game.

Their are 5 stages of grief these are denial,anger,bargining,depression,acceptance. I'm only now touching acceptance by talking about it. But I have for years floated between denial and acceptance. My childhood was ruined. I have had friends shun me. After I found the truth I went in to denial got in the wrong crowd often getting wasted on cannabis and alcohol. I'm 28 now and it's took me this long to get back on track and get an education. As a male I want the medical profession to know what some boys have gone through we need the help as well as girls especially phychological issues. I've started on a short book. The boy with congenital adrenal hyperplasia. and have you spoken to Malissa who runs the ahn network where my story is she has gone through the same as you and is very supportive. My picture profile is going on the web shortly. Keep a look out. I hope with my story etc I will have contact with some males soon. Even teenagers that are going through the stage of being the tallest to the shortest. I got comments after your just a little s*** now, you used to be massive. It all hurts and hurts deeply.

Anyway going to work now night shift keep in touch

Ian

ian to aimee




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