Congenital Adrenal Hyperplasia

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re: re: CAHypoplasia
Sep. 10th, 2006   7:59pm

Hi Leone

As I sit here writing this, my son is sat with me and has just read your message. I have asked my son what we should tell you and his response is:

  • its easy (which I think means that he doesnt find it difficult)
  • medicine is ok - 3 times a day
  • he is very happy (just got back from 4 weeks holiday in cornwall - no problems)
  • doctors and nurses are nice
  • dont worry...

Ok - thats what Lewis has to say - to put some of this into context - there will be good days and bad days, and the bad days will probably be a bit scarry - as your daughter gets older the bad days get less and less (my son was last admitted to hospital about 2 years ago and was only in for a couple of days).

Unfortunately the Internet is very good at highlighting what can go wrong and very few people seem to talk about the "norm" - the "norm" for us is very happy - we have 3 excellent boys and one just happs to need steriods 3 times a day - other than that I would feel confident to day he is perfect.

Your daughter is still your baby, so by all means be vigilant but also enjoy her childhood.

Any questions - ask

Paul & Lewis

Paul




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