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Thank you very much for your response it was greatly appreciated I guess it just gets to a point when you read so many stories of other peoples lives with the condition where things have happened that you do worry - especially since I am now expecting my second child as yet we dont know if the new baby has CAH we are awaiting to find out but from Ellie-Louise there are as yet no signs of anything bad she is just so perfect and normal and up to now there has only been a couple of times when her steroids have had to be increased but nothing serious fingers crossed and I certainly wouldnt change her for the world.
I hope you managed to find out the best places for your esearch.