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hi paul, my name is sue ,i have a daughter with cah ,i also and still feel that we are the only ones , but my daughter is almost 18 ,and we havnt done to bad so far, she went through school ,with a few little hicupps but nothing majorand is now working as a nursery nurse in a local nursery. I think ive done most of the worring for her, she is very laid back, i have always been honest with her and never hid anything th e drs have said , i think this has helped ,living with cah easier. always here to talk ,your not on your own.