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re: re: would like to meet/speak to other parents Dec. 4th, 2006 12:23am
hey sarah tell what it like to live in africa? i too have a child with cah will soon be six years old. when did you found out your little girl had cah? also how much meds is she on. would love to chat with you about your life and the ups and down to raising kids with cah. i live in the USA and in a town where i am the only one with a child with c ah. when people found out they jhave alots of question about it. because they have never heard of it . i to never heard of it unstill my son was born with it as you know it change your life alittle but i have a loving husband who help out alots. please let me hear from anyone out there are you can e-mail me at v_gainer@bellsouth.net any time. waiting to hear
