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re: re: would like to meet/speak to other parents Dec. 6th, 2006 12:12pm
hi there i also have a little girl she is 8 week old and also a salt loser. I have 3 children but my baby rebecca is the first with C.A.H. I too have never heard of this finding it a bit stressfull and complecated,my endocrine docters and all the nurses and surgens are fantastic who look after her, in the last 8 week we have seen plenty docters and nurses. I am finding it a little easier as i have spoken too lots of various people, some have come across this condition before but family and friends have never heard of it so there are lots of quistions. I am looking forward to xmas with my baby gir but hopeing we are not in hospital with 1 thing or another, we spend most of our time travelling to and from hospital or spending nights in and days here and there. I am finding some people who do not know about C.A.H can be rather rude i am trying to lead a normal life so i am in town xmas shopping it is time to give baby her meds salt and hydrocortsone people start to stare at you why i find it a little awkward but at the same time a am not going to hide my baby girl away. i would love to chat to you and maybe meet up i live in a town called berkshire south east of england
