Congenital Adrenal Hyperplasia

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re: re: would like to meet/speak to other parents
May. 8th, 2007   11:02pm

Hi kelli i ve got a girl 4 years old now and it was so hard at first knowing her condition. she had salt in her bottle's medicine (hydrocortisone) made fresh every week i just thought do i live at the hospital it was so hard to cope with it all. But you know what me and my partner have coped well, now my daughter takes tablets and she goes to nursery and we ve been on holiday and we do everything a normal healthy child would do. You just seem to cope i think and they is days when i worry like mad but what mother does nt. Does your daughter take tablets?

sandie




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