Congenital Adrenal Hyperplasia

ATTENTION MEDIA & OTHERS SEEKING INTERVIEWS! 
If you represent a media company, are a student writing a report or anyone interested in interviewing our visitors, please seek permission (see email address at the bottom of the page) before posting your requests or emailing solicitations for any talk show, magazine, thesis, census or other interview on any message board on this site. If not, your posts WILL be removed. Please respect the privacy of our members.

    Return to Page 2Post reply       


re: re: re: might have late onset cah
May. 29th, 2007   9:48am

Hi Dee,  The internet is an excellent source of info but can be quite frightening too!  If you have LOCAH, it is a very mild form and some adults who are diagnosed do not need life time treatment but do require it to balance hormones in order to regulate periods in order to become pregnant.  You really need to get a definate diagnosis asap.  Whereabouts in the UK do you live?  Which endocrinologist are you seeing?    If under someone who is an expert in reproductive endocrinology, then there shouldn't be any need to go on a fertility waiting list as they should have the knowledge themselves to help you become pregnant  As for losing weight, that is often part and parcel of polycystic ovaries and not easy without help.  There are medications that can help you achieve this too, as well as the hair growth (metformin and spironolactone) that women with CAH often take. 

Don't be afraid to make a nuisance of yourself, try and get an earlier appointment, as November does seem a long way off to live with the uncertainty.  Explain your concerns and see if you can get the tests done any earlier. 

Sue




    Return to Page 2Post reply       


This Thread





- Post a reply - 

page processed in 0.167567968369 seconds
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks