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Thanks for your reply. My son is still waiting to see varies people. My doctor has no knowledge of his condition and wont interfere, I just keep getting referred back to my normal peadiatrition who is very cagey answering questions and concerns. I am under york hospital but have to wait to see someone else from leeds.
The way i found out about his condition was we were under the peadiatrtion as he has severe behavoural problems and he had signs of early puberty and increased sweating so they did some tests. 6months later i recieved a letter saying my son had what could be a life threatening illness and required urgent treatment, as you can imagine recieving a letter from the post then having to try and get through to a peadiatrican, i was going out of my mind.
I am still worried on the long term affects of him taking corlan and what will happen in the future for him, and i really have very little knowlege of the condition. They say he has partial CAH,i can remember the full name but i know it is 17.
I didnt know if i couls see anyone private to find things out as ben has so many problems for a 7yr old, his behavioural problems has severlly affected his schooling and at present isnt in mainstream school as they have let him dont so many times and is taumatised by what officals have said was physical abuse from teachers and staff employed for him. he dosent have a normal childhood what kids should have at present and no friends nr by etc, its really sad.
I am very grateful for you writing back as this at present seems my only source of information, thankyou
