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Hello Im a mother of two whome has just recently been told my two children have cah my daughter is 7 and my son is 4. my daughter is on tablets 3x daily with higher doses when ill my son is only on meds when he is ill at the moment. The doctors in my local area havent really delt with cah before and all referr to text book which doesnt fill me with confidence. Ive been told the type they have is rare due to the fact they are not salt loosers. wondered if there was anyone else out there with the same kind of cah and would be grateful to know how there condition has been managed etc etc.
