Hi Becky!

The advice given to you by the others is excellent.

Do you regularly consult with an Endocrinologist and have regular blood tests done? Is this Endocrinologist very knowledgeable or a specialist in CAH? You need to have a good evaluation as it sounds like your treatment has gotten out of hand!

As the others have said you may need a longer acting steroid like Prednisolone or Dexamethasone.

Also as Kathy mentioned, have you had a GI (gastrointestinal) specialist to evaluate your GI problems? They need to look for Crohns, Coeliac (blood tests and biopsy during colonoscopy) and other disorders like Ulcerative Colitis etc.

I don't think I have come across 24/7 diarrhoea in high dose steroids - it could well be another disorder altogether causing this....but you need to get your CAH back on track....of course 24/7 diarrhoea will not help the steroid absorption either. Will only worsen the problem.

Keep us informed!

 

 

 

 

 

becky : whats going on (Jan. 10th, 2008   10:21pm)
bee : re: whats going on (Jan. 10th, 2008   10:28pm)
Rick : re: whats going on (Jan. 10th, 2008   10:34pm)
becky : re: re: whats going on (Jan. 10th, 2008   10:40pm)
Rick : re: re: re: whats going on (Jan. 10th, 2008   10:51pm)
becky : re: whats going on (Jan. 10th, 2008   10:41pm)
M1 : re: whats going on (Jan. 11th, 2008   1:22am)
Kathy : re: re: whats going on (Jan. 11th, 2008   8:59am)
Megan: re: what's going on (Jan. 15th, 2008   1:14am)
becky: re: re: what's going on (Jan. 21st, 2008   2:28am)
Barbara: re: whats going on (Feb. 13th, 2008   2:15am)